Table 2: Outcomes and complications at NICU admission, at time of discharge and long-term.
Variable |
Median (IQR) or N (%) |
IN HOSPITAL OUTCOME or COMPLICATION (N = 165) |
|
Mortality |
21 (13.7) |
Pre-operative septal intervention |
13 (7.9) |
Age at surgery (days) |
5 (3, 7) |
Unplanned intervention |
52 (31.5) |
Delayed sternal closure |
94 (57.3) |
Open chest days |
4 (3, 5) |
Cardiac arrest |
16 (9.8) |
ECMO |
19 (11.6) |
Other surgery |
20 (12.2) |
Post-op mechanical ventilation (days) |
6 (4, 7.75) |
Total length of any respiratory support (days) |
15 (9, 27) |
Arrhythmia |
43 (26.5) |
Thrombotic event |
29 (17.2) |
Diaphragm paralysis |
13 (8.0) |
Vocal cord paralysis |
21 (12.9) |
Chylothorax |
14 (8.5) |
Stroke |
6 (3.7) |
Seizure |
8 (4.9) |
Necrotizing enterocolitis |
8 (4.9) |
# of X-rays |
21 (15, 30) |
X-rays per hospital day |
0.63 |
# of ECHOs |
8 (6, 11) |
ECHOs per hospital day |
0.25 |
DISCHARGE OUTCOME or COMPLICATION (N = 132) |
|
Discharged home after first stage |
132 (80.0) |
Length of NICU admission (days) |
33 (21, 53) |
Feeding regimen at discharge (N = 132) |
|
PO + NG |
72 (54.5) |
PO |
37 (28.0) |
GT |
10 (7.6) |
NG |
13 (8.8) |
Technology at discharge |
97 (73.5) |
Number of discharge meds |
5 (3, 8) |
Number of discharge appointments |
6 (4, 7) |
LONG-TERM OUTCOMES (N=109) |
|
# of emergency room visits in 1st year of life |
1 (0,2) |
# of catheterizations in 1st year of life |
1 (1, 2) |
# of surgeries in 1st year of life |
2 (2, 3) |
Total # Hospital days in 1st year of life |
60 (37, 93) |
Total # of Hospital days in 1st year of life (not including NICU admission) |
14 (6.8, 34.3) |
Transplant |
16 (14.4) |
Age at transplant (years) |
3 (1.3, 3.6) |
Protein losing enteropathy |
7 (8.0) |
Plastic bronchitis |
1 (1.0) |
Mortality at time of chart review of entire cohort |
35 (21.2) |
Mortality age < 1 year |
29 (82.9) |
Mortality age > 1 to < 3 years |
2 (5.7) |
Mortality > 3 years |
4 (11.4) |
ECMO: Extracorporeal Membrane Oxygenation; post-op: Post-Operative; ECHO: Echocardiogram; PO: Oral; NG:Nasogastric; GT: Gastric Tube.