Aspects of Daily Life

Subjects n/N (%)

Lacking age-appropriate independence

7/12 (58)

Exercise intolerance

10/12 (83)

Extensive planning required for daily life

10/12 (83)

Caregiver avoidance of certain events, activities, or situations

12/12 (100)

Excessive daytime sleepiness

7/12 (58)

Wakes up during the night

5/12 (42)

Wakes up earlier than expected

3/10 (30)