Unaffected (n  =  40)

Rare Disease (n = 40)

Total (N = 80)

p

Count (%)

Count (%)

Count (%)

Child Age

0.4957

> 10 years

25 (62.5)

22 (55.0)

47 (58.8)

≤ 10 years

15 (37.5)

18 (45.0)

33 (41.2)

Child Sex

1

 Male

28 (70.0)

28 (70.0)

56 (70.0)

 Female

12 (30.0)

12 (30.0)

24 (30.0)

Parent Race

< 0.0001

Non-Hispanic white

20 (50.0)

37 (92.5)

57 (71.2)

Other

20 (50.0)

3 (7.5)

23 (28.8)

Parent Education

< 0.0001

Graduate or professional degree

32 (80.0)

14 (35.0)

46 (57.5)

Less than G/P

8 (20.0)

26 (65.0)

34 (42.5)

Marital Status

0.1763

Married

33 (82.5)

37 (92.5)

70 (87.5)

Other

7 (17.5)

3 (7.5)

10 (12.5)

Employment

0.0049

Full-time

32 (80.0)

20 (50.0)

52 (65.0)

Less than full-time

8 (20.0)

20 (50.0)

28 (35.0)

Family Income

0.1709

$80,000 or above

21 (52.5)

27 (67.5)

48 (60.0)

Less than $80,0000

19 (47.5)

13 (32.5)

32 (40.0)

Child Functional Ability

< 0.0001

Total dependence

0 (0)

7 (17.5)

7 (8.8)

Severe dependence

0(0)

1 (2.5)

1 (1.2)

Moderate dependence

0(0)

13(32.5)

13 (16.3)

Slight dependence

3 (7.5)

5 (12.5)

8 (10.0)

Total independence

37 (92.5)

14 (35.0)

51 (63.7)

Mean (SD)

Mean (SD)

Mean (SD)

Parent Age

41.5(6.4)

42.6(6.1)

42.0(6.3)

0.4239

Family Cohesion

2.7(0.8)

3.2(1.1)

2.9(1.0)

0.0122